AUTISM FUNDING DEBATE RAGES ON

September 27, 2009

Sep 27, 2009

THE PROVINCIAL GOVERNMENT DEFENDED ITS DECISION THIS WEEK TO CUT AN EARLY INTERVENTION PROGRAM FOR CHILDREN WITH AUTISM.

ONE OF THE PARENTS IN VICTORIA AFFECTED BY THE DECISION SAYS SHE WILL CONTINUE TO FIGHT TO KEEP THE PROGRAM RUNNING.


AUREL DURUISSEAU SAYS IT MAKES GOOD ECONOMIC SENSE TO CONTINUE THE EARLY INTERVENTION PROGRAM.

“THIS IS GOING TO COST A LOT OF MONEY IN THE FUTURE. AND NOT JUST THIRTY, FORTY, FIFTY YEARS DOWN THE ROAD WHEN THIS GOVERNMENT’S LONG GONE. WE’RE TALKING TWO OR THREE YEARS WHEN THESE KIDS GO TO SCHOOL, NOT PREPARED, NEEDING MORE SUPPORT, MORE SPECIAL [EDUCATION], MORE TEACHER TIME.”

MINISTER OF CHILDREN AND FAMILY DEVELOPMENT MARY POLAK MET WITH A GROUP OF PARENTS WEDNESDAY AND INDICATED THE GOVERNMENT WANTS TO SPREAD FUNDING OUT OVER A LARGER NUMBER OF AUTISTIC CHILDREN.

DURUISSEAU SAYS SHE HAS CONTACTED OTHER PARENTS AFFECTED IN THE PROVINCE WHO ARE READY TO STAGE RALLIES.

Original article here.

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Asperger Support Groups Have Proven Beneficial to Parents and Children Coping with Autism Disorder

July 1, 2009

Asperger support groups are not just something for the teen or adult with autism but it’s a great idea for the parents of an autistic child. There are two types of support groups available to parents of autistic children. There are the ones that can be attended by one or both parents that meet regularly over a cup of coffee and sit down and talk about the struggles that they and their children face. This gives parents the opportunity to vent their frustrations as well as learn from others who have been through the struggles that they are trying their best to deal with.

Or, for those who find getting out difficult, maybe because they are not comfortable leaving their autistic child with a babysitter, there are always interactive websites on the Internet. This lets you talk to people all over the world who face the same problems you do no matter how big or small. This allows an exchange of ideas almost the same as the asperger support groups who meet weekly.

Some studies suggest that its healthier emotionally for parents to try to make the effort to join asperger support groups, even if run solely by parents, just because it means they’ll get out once a week.

With the advent of the World Wide Web forums have sprung up that deal with everything that one might want to talk about. Interestingly these forums have proven to be a wonderful thing for those with autism as the written word often comes easier to them then the spoken word. They have such difficulty with social interactions that this gives them a forum to talk without having to carry on a regular conversation. They can speak without the need for spoken words. They can communicate with their fingers and especially for those who are higher functioning they can talk to others like themselves and see how others cope. This gives them the opportunity to talk to their peers. Not just people their own age, but others who have autism and can exchange ideas on coping.

They may be able to gain support and make friends with others who can help them make decisions about their futures. People like them who may have had to make a lot of the decisions they are trying to make about living arrangements or getting a job. Being able to go to chat rooms and talk about these things with other autistic people can open up the world to them.

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How to Interact With an Autistic Child Through the Picture Exchange Communication System (PECS)

May 24, 2009

Picture exchange communication system (PECS) is a type of alternative communication which uses pictures as a substitute for words to aid children with autism to communicate. It is made especially for kids with autism who are delayed in speech development.

This kind of program provides exchange and repetition, as well as prompts to enhance and emphasize the benefits of interaction and ability to express oneself to the point that these children could eventually become verbal.

When learning to use PECS, the child is first given a series of pictures of his favorite toys or food. If the child favors one picture, he gives it to a communication partner. This can be a parent or a therapist. In turn, the communication partner gives the child the specific toy or food. This form of exchange strengthens communication.

PECS may also be used when a child wants to make comments pertaining to his environment. For instance, if the child sees a bike, he hands a picture of a bike to his parent. The child will then comprehend the importance and usefulness of communicating, and will probably use natural speech eventually.

How is this done?

First, you have to look for pictures that your child can really relate to. Have it laminated, you can make your own binder, or purchase a working PECS binder.

Second, make sure that there are minimal distractions. Then lay out 2 to 3 picture cards.

Third, tell your child to choose from the cards by saying “you choose.”

Fourth, stretch out your hand and open your palm, then patiently wait for your child to choose and place the card on it.

Next, prompt your child to give you the picture card after they pick it up. This demonstrates that he wants the particular food, or toy.

Lastly, give him a reward. It can be a portion of the food in the picture, or his favorite toy, or you can engage him in a round of game.

Repeat the process with the use of different cards. Use a variety of activities, choices and rewards.

According to recent studies, this form of communication is effective in giving the learner the necessary tools to equip him in making communication smoother. It can also minimize negative behaviors caused by frustration and build spoken language abilities. Indeed, PECS is a priceless learning tool.

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Speech-Language Pathologists List and Contact Information

October 23, 2008

Association for Research in Otolaryngology (ARO)
Address: 19 Mantua Road, Mt. Royal, NJ, 08061
E-mail: headquarters@aro.org
Internet: www.aro.org
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American Broncho-Esophagological Association (ABEA)
Address: Stanford University, 801 Welch Road, Stanford, CA, 94305-5739
E-mail: koltai@stanford.edu
Internet: www.abea.net
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Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell)
Address: 3417 Volta Place, NW, Washington, DC, 20007-2778
E-mail: info@agbell.org
Internet: www.agbell.org
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AG Bell Academy for Listening and Spoken Language
Address: 3417 Volta Place, NW, Washington, DC, 20007
E-mail: shall@agbellacademy.org
Internet: www.agbellacademy.org
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Aphasia Hope Foundation (AHF)
Address: P.O. Box 26304, Shawnee Mission, KS, 66225-6304
E-mail: sandycaudell@aphasiahope.org
Internet: www.aphasiahope.org
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American Speech-Language-Hearing Association (ASHA)
Address: 2200 Research Blvd., Rockville, MD, 20850
E-mail: actioncenter@asha.org
Internet: www.asha.org
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American Cleft Palate-Craniofacial Association (ACPA) and Cleft Palate Foundation (CPF)
Address: 1504 East Franklin Street, Suite 102, Chapel Hill, NC, 27514
E-mail: CPF E-mail: info@cleftline.org
Internet: www.cleftline.org / www.acpa-cpf.org
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Boys Town National Research Hospital (BTNRH)
Address: 555 North 30th Street, Omaha, NE, 68131
E-mail: moeller@boystown.org
Internet: www.boystownhospital.org / www.babyhearing.org
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CHERAB Foundation
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
E-mail: help@cherab.org
Internet: www.cherab.org / www.speechville.com
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Council of Academic Programs in Communication Sciences and Disorders (CAPCSD)
Address: P.O. Box 26532, Minneapolis, MN, 55426
E-mail: cap@incnet.com
Internet: www.capcsd.org
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Childhood Apraxia of Speech Association of North America (CASANA)
Address: 1151 Freeport Road, #243, Pittsburgh, PA, 15238
E-mail: helpdesk@apraxia-kids.org
Internet: www.apraxia-kids.org
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Easter Seals, Inc.
Address: 230 West Monroe, Suite 1800, Chicago, IL, 60606
E-mail: info@easterseals.com
Internet: www.easterseals.com
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National Spasmodic Dysphonia Association, Inc. (NSDA)
Address: 300 Park Boulevard, Suite 415, Itasca, IL, 60143
E-mail: NSDA@dysphonia.org
Internet: www.dysphonia.org
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National Cued Speech Association (NCSA), Deaf Children’s Literacy Project
Address: 5619 McLean Drive, Bethesda, MD, 20814
E-mail: info@cuedspeech.org
Internet: www.cuedspeech.org
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National Black Association for Speech-Language and Hearing (NBASLH)
Address: 800 Perry Highway, Suite 3, Pittsburgh, PA, 15229
E-mail: nbaslh@nbaslh.org
Internet: www.nbaslh.org
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National Center for Voice and Speech (NCVS)
Address: The Denver Center for the Performing Arts, 1101 13th Street, Denver, CO, 80204-5319
E-mail: NCVSWebmaster@dcpa.org
Internet: www.ncvs.org
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Rehabilitation Engineering and Assistive Technology Society of North America (RESNA)
Address: 1700 North Moore Street, Suite 1540, Arlington, VA, 22209-1903
E-mail: info@resna.org
Internet: www.resna.org
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Stuttering Foundation of America (SFA)
Address: 3100 Walnut Grove Road, Suite 603, Memphis, TN, 38111
E-mail: info@stutteringhelp.org
Internet: www.stutteringhelp.org / www.tartamudez.org
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Sertoma International
Address: 1912 East Meyer Blvd., Kansas City, MO, 64132-1174
E-mail: infosertoma@sertomahq.org
Internet: www.sertoma.org
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TASH
Address: 1025 Vermont Avenue, 7th Floor, Washington, DC, 20005
E-mail: info@tash.org
Internet: www.tash.org
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Testing, Evaluation, and Certification Unit, Inc. (TECUnit )
Address: 6567 S. Cedar Creek Circle, Salt Lake City, UT, 84118
E-mail: ilove2cue@yahoo.com
Internet: www.TECUnit.org
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United States Society for Augmentative and Alternative Communication (USSAAC)
Address: P.O. Box 10906, Baltimore, MD, 21214
E-mail: Barbara@ussaac.org
Internet: www.USSAAC.org
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The Voice Foundation
Address: 1721 Pine Street, Philadelphia, PA, 19103
E-mail: office@voicefoundation.org
Internet: www.voicefoundation.org
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Voice Academy
Address: University of Iowa, Speech Pathology & Audiology, Iowa City, IA, 52242
E-mail: julie-ostrem@uiowa.edu
Internet: www.voiceacademy.org
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Autism Organizations and Their Contact Information

October 23, 2008

Autism organizations (please feel free to post additional organizations):

Autism Network for Hearing and Visually Impaired Persons
Address: 7510 Ocean Front Avenue, Virginia Beach, VA, 23451

Autism Society of America
Address: 7910 Woodmont Avenue, Suite 300, Bethesda, MD, 20814
E-mail: info@autism-society.org
Internet: www.autism-society.org

American Speech-Language-Hearing Association (ASHA)
Address: 2200 Research Blvd., Rockville, MD, 20850
E-mail: actioncenter@asha.org
Internet: www.asha.org

Autism Speaks
Address: 2 Park Avenue, 11th floor, New York, NY, 10016
E-mail: contactus@autismspeaks.org
Internet: www.autismspeaks.org

Birth Defect Research for Children, Inc. (BDRC)
Address: 800 Celebration Avenue, Suite 225, Celebration, FL, 34747
E-mail: staff@birthdefects.org
Internet: www.birthdefects.org

CHERAB Foundation
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
E-mail: help@cherab.org
Internet: www.cherab.org / www.speechville.com

Council for Learning Disabilities (CLD)
Address: 11184 Antioch Road, #405, Overland Park, KS, 66210
E-mail: lnease@cldinternational.org
Internet: www.cldinternational.org

Council for Exceptional Children (CEC)
Address: 1110 North Glebe Road, Suite 300, Arlington, VA, 22201
E-mail: service@cec.sped.org
Internet: www.cec.sped.org

Easter Seals, Inc.
Address: 230 West Monroe, Suite 1800, Chicago, IL, 60606
E-mail: info@easterseals.com
Internet: www.easterseals.com

HEATH Resource Center (National Clearinghouse on Postsecondary Education for Individuals with Disabilities)
Address: 2134 G Street, NW , Washington, DC, 20052
E-mail: askheath@gwu.edu
Internet: www.heath.gwu.edu

MAAP Services for Autism, Asperger, and PDD/NOS (MAAP Services)
Address: P.O. Box 524, Crown Point, IN, 46307
E-mail: info@maapservices.org
Internet: www.maapservices.org

National Dissemination Center for Children with Disabilities (NICHCY)
Address: P.O. Box 1492, Washington, DC, 20013-1492
E-mail: nichcy@aed.org
Internet: www.nichcy.org

National Alliance for Autism Research (NAAR)
Address: 99 Wall Street, Princeton, NJ, 08540
E-mail: naar@naar.org
Internet: www.naar.org

National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse
Address: 1 Communication Avenue, Bethesda, MD, 20892-3456
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov

National Cued Speech Association (NCSA), Deaf Children’s Literacy Project
Address: 5619 McLean Drive, Bethesda, MD, 20814
E-mail: info@cuedspeech.org
Internet: www.cuedspeech.org

National Institute on Deafness and Other Communication Disorders (NIDCD)
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov

Testing, Evaluation, and Certification Unit, Inc. (TECUnit )
Address: 6567 S. Cedar Creek Circle, Salt Lake City, UT, 84118
E-mail: ilove2cue@yahoo.com
Internet: www.TECUnit.org

TASH
Address: 1025 Vermont Avenue, 7th Floor, Washington, DC, 20005
E-mail: info@tash.org
Internet: www.tash.org

United States Society for Augmentative and Alternative Communication (USSAAC)
Address: P.O. Box 10906, Baltimore, MD, 21214
E-mail: Barbara@ussaac.org
Internet: www.USSAAC.org

Council of American Instructors of the Deaf (CAID)
Address: P.O. Box 377, Bedford, TX, 76095-0377
E-mail: caid@swbell.net
Internet: www.caid.org / www.caidconference.org

Need Help with Apraxia of Speech? Contact Information Below

October 23, 2008

I was asked a question about where to find help with apraxia of speech so I thought that I would post this for anyone else that may need it.

NIDCD maintains a directory of organizations that can answer questions and provide printed or electronic information on apraxia of speech. Please see the list of organizations at www.nidcd.nih.gov/directory.

Use the following keywords to help you search for organizations that are relevant to apraxia of speech:

For more information, additional addresses and phone numbers, or a printed list of organizations, contact:

NIDCD Information Clearinghouse
1 Communication Avenue
Bethesda, MD 20892-3456
Toll-free Voice:  (800) 241-1044
Toll-free TTY:  (800) 241-1055
Fax:  (301) 770-8977
E-mail:  nidcdinfo@nidcd.nih.gov

Directory of Organizations

New Search

Audiology and Speech Pathology Services, U.S. Department of Veterans Affairs (VA)
Address: VA Medical Center, 50 Irving Street, NW, Washington, DC, 20422
E-mail: cathy.greener@va.gov
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American Speech-Language-Hearing Association (ASHA)
Address: 2200 Research Blvd., Rockville, MD, 20850
E-mail: actioncenter@asha.org
Internet: www.asha.org
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Birth Defect Research for Children, Inc. (BDRC)
Address: 800 Celebration Avenue, Suite 225, Celebration, FL, 34747
E-mail: staff@birthdefects.org
Internet: www.birthdefects.org
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Childhood Apraxia of Speech Association of North America (CASANA)
Address: 1151 Freeport Road, #243, Pittsburgh, PA, 15238
E-mail: helpdesk@apraxia-kids.org
Internet: www.apraxia-kids.org
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CHERAB Foundation
Address: P.O. Box 8524, Port St. Lucie , FL, 34952
E-mail: help@cherab.org
Internet: www.cherab.org / www.speechville.com
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National Institute on Deafness and Other Communication Disorders (NIDCD) Information Clearinghouse
Address: 1 Communication Avenue, Bethesda, MD, 20892-3456
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov
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National Institute on Deafness and Other Communication Disorders (NIDCD)
Address: Office of Health Communication and Public Liaison, 31 Center Drive, MSC 2320, Bethesda, MD, 20892-2320
E-mail: nidcdinfo@nidcd.nih.gov
Internet: www.nidcd.nih.gov
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Testing, Evaluation, and Certification Unit, Inc. (TECUnit )
Address: 6567 S. Cedar Creek Circle, Salt Lake City, UT, 84118
E-mail: ilove2cue@yahoo.com
Internet: www.TECUnit.org
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United States Society for Augmentative and Alternative Communication (USSAAC)
Address: P.O. Box 10906, Baltimore, MD, 21214
E-mail: Barbara@ussaac.org
Internet: www.USSAAC.org
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